Mission Statement

NephHope  is dedicated to finding a treatment and a cure for individuals  diagnosed with Nephronophthisis and Senior-Loken Syndrome through the  funding of research as well as increasing awareness and providing  support for those dealing with this diagnoses and their families.      ______________________________________________________________________________


The  purpose of this website is two-fold.  First, it is to start a  patient/family support group for those dealing with Nephronophthisis and  Senior-Loken Syndrome.  The age of onset is very similar in both of  these diseases and the families have shared experiences through the  necessity of dialysis and renal transplantation.  Second, we will look  to assemble a Scientific Advisory Board (SAB), then start fundraising  for research and institute rules for a peer-reviewed research  applications to be submitted and reviewed for funding once a year.  This  research would further the identification and treatment for those  afflicted with these diseases.  Whatever we can do to advance the  therapies/treatments for those dealing with Nephronophthisis, we will  do!