Friends of NephHope,
Please join us as we celebrate
A VERY successful year for The NephHope Foundation &
The 2nd year anniversary of Logan’s kidney transplant
Saturday, December 7th, 2013
7:00 pm to 11:00 pm
Bordentown Elks Lodge
11 Amboy Road, Bordentown, NJ 08505
Food, DJ, Cash Bar, Basket Raffle
$40 donation per person
A grown-ups night out to celebrate a great cause
Download Registration Form
Questions? Please email firstname.lastname@example.org or call Leslie at 609 610 2221
Together We Believe a Cure is Possible!
Leslie & Curtis Wyers
MISSION STATEMENT & PURPOSE:
NephHope is dedicated to finding a treatment and a cure for individuals diagnosed with Nephronophthisis and Senior-Loken Syndrome through the funding of research as well as increasing awareness and providing support for those dealing with this diagnoses and their families.
The purpose of this website is two-fold. First, it is to start a patient/family support group for those dealing with Nephronophthisis and Senior-Loken Syndrome. The age of onset is very similar in both of these diseases and the families have shared experiences through the necessity of dialysis and renal transplantation. Second, we will look to assemble a Scientific Advisory Board (SAB), then start fundraising for research and institute rules for a peer-reviewed research applications to be submitted and reviewed for funding once a year. This research would further the identification and treatment for those afflicted with these diseases. Whatever we can do to advance the therapies/treatments for those dealing with Nephronophthisis, we will do!